Sunday, June 14, 2015

veague heath update/info ensues

i just thought that since i post about my illness so much i ought to write about what parts effect me the most and what i have to begin with. im not going to go into dates of diagnosis, times and treatments too much, because this is a vastly general update. i have SLE (systemic Lupus erythematosus) this causes my antibodies to attack healthy cells causing me RA (rheumatoid Arthritis), skin rashes, scaring in my lungs (pulmonary fibrosis) kidney and liver issues etc. it can also increase my risk for cancer. interestingly enough the treatment for this disease is chemo drugs and imunosuppressants. i also was fairly recently diagnosed with Ehlers-Danlos syndrome which is a genetic condition causing my body to produce improperly made collagen which makes up most of the body systems. this causes my stomach and lower intestines to be parilized (gastroparesis), hypermobile joints, and random dislocations, dysautonomia (vertigo, low BP, high heart rate, fainting, speech problems) herat problems (arrhythmias, mitral valve prolapse) and brain problemsa (migraines and seizures) with all of these problems i take over 20 pills daily plus other treatments and injections. plus i use a cane or a wheelchair for long distances because of my joint hypermobility and balance issues. i have a tumblr blog at hands-full-of-hospital-bands.tumblr.com where i write daily about my life with disability and illness.

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